The European Health Data Space From a Civil Society Perspective

As a policy initiative, the EHDS aims to provide a common framework across EU Member States for the sharing and exchange of quality health data such as electronic health records, patient registries, and genomic data, in order to support healthcare delivery, but also to facilitate health research, policymaking, and legislation.

We aim to bring together policymakers and members of the civil society – particularly representatives of patient groups, health practitioners, and vulnerable communities – to discuss the implications that the creation of the EHDS will have on EU citizens. The event will thus offer the opportunity to educate the audience about the importance of the EHDS, while also providing members of civil society with a platform to share their views and potential concerns on the issue.