Moving forward with the European health data space: the need to restore trust in European health systems

This comment, published in The Lancet Regional Health – Europe, was written in collaboration with EPHA members representing diverse positions around the European Health Data Space (EHDS) and was co-authored by Jaisalmer de Frutos Lucas (EPHA) and Hans Torvald Haugo (ECOO). 

The European institutions reached an agreement on the regulation of the EHDS on March 15th, 2024, after months of extended negotiations that prolonged beyond the original deadline. During the trilogues between the European Commission, the European Parliament, and the Council of the European Union, the main point of conflict revolved around consent mechanisms. Although a provisional agreement has been established, this agreement points towards a fragmented solution. Here, we critically argue how fear-based negotiations, rather than strengthening trust, might have hampered it, potentially discouraging citizens from using healthcare services due to a lack of reassurance in data protection. 

Disclaimer: the opinions – including possible policy recommendations – expressed in the article are those of the author and do not necessarily represent the views or opinions of EPHA. The mere appearance of the articles on the EPHA website does not mean an endorsement by EPHA.

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