Guest article by the European Organisation for Rare Diseases (EURORDIS) The European Health Data Space (EHDS) could be a new opportunity to ultimately improve the lives of over 30 million Europeans living with rare diseases. There are 6000 various rare diseases but...
In a Joint Statement, together with AIM, EAHP, EPF, EURODIS and HOPE, we call for a society-centred digitisation of healthcare. On behalf of patients, healthcare professionals, hospital pharmacists, payers, and healthcare institutions, we call on policymakers to: Not...
We, the undersigned not-for-profit organisations, representing patients, healthcare professionals, hospital pharmacists, payers, and healthcare institutions call on European policy-makers to ensure a more coherent, fair and society-centred approach to the European...
The European Health Data Space (EHDS) regulation aims to provide a common framework across EU Member States for accessing and sharing of health data such as electronic health records, patient registries, hospital discharge reports, and genomic data to support...
A new joint statement welcomes the digital health action plan for the WHO European Region and calls for its mindful and balanced implementation. The digital transition indeed represents an amazing opportunity which both health professionals and patients can receive...
